Posts Tagged glutamate

Dr. Stanley Lang, MD has a 90% Success Rate Treating RLS Patients over a 30 Year Period

Over 30 years ago Dr. Stanley Lang, MD developed a program to treat RLS and has been helping his patients to heal their RLS ever since (starting way back before the condition had an actual name).

His success rate is around 90% for those patients that have followed his regime.

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“Restless Legs Syndrome May be a Sign of a Bigger Health Problem” by Dr. Michael Jurgelewicz, DC, Bucks County Center for Functional Medicine

MikeJurgelewitz-059h-239x300A nationally-recognized sleep expert has published an article explaining Restless Legs Syndrome (RLS) as a possible biomarker for underlying disease.

The editorial was in the March 5, 2014 issue of Neurology the medical journal of the American Academy of Neurology and was authored by Boston Medical Center neurologist Sanford H. Auerbach, MD.

Restless Leg Syndrome is a disorder of the nervous system. It is characterized by throbbing or other uncomfortable sensations in the legs with an uncontrollable urge to move them. Symptoms typically occur at night when a person is relaxing or getting ready for bed and can increase in severity during the night. Most people with RLS have difficulty falling asleep and staying asleep, which can lead to fatigue. Many people with RLS report that their job, personal relations, and activities of daily living are strongly affected as a result of their sleep deprivation. They often have difficulty concentrating and brain fog.

The editorial was in response to an analysis of 12,556 men who were followed over time by the Health Professionals Follow-Up Study, published in the same issue of Neurology, which showed multiple disease associations with RLS.

The team found patients with RLS had a higher mortality rate than similar men, and showed an especially strong tendency toward cardiovascular disease and hypertension. In addition, men with RLS were more likely to be diagnosed with lung disease, endocrine disease, as well as diseases of nutrition and metabolism and immune system problems.

Researchers suggest that restless leg syndrome is a meaningful biomarker for serious disease, and that RLS screening may become more common as a tool for primary care providers to identify patients at risk.

I have had personal success with patients simply by adding magnesium and calcium at bedtime. They both calm muscles and nerves. Calming botanicals such as valerian, passion flower, lemon balm, and skullcap can also be added to support sleep and relaxation. You can also assess RBC nutrients such as magnesium, calcium, and potassium through many functional laboratories. In addition to assessing nutrient status they do play a significant role with blood pressure regulation and overall cardiovascular health. This provides a better indicator of nutrient status, compared to the serum.

I would also recommend an organic acid test. An organic acid test can identify imbalances occurring in the body that 202333-legs-bigprecede abnormal findings on a CBC or an MP. Organic acids are products of metabolism that can sensitively identify nutrient deficiencies that lead to metabolic roadblocks. Organic acids go a step further then measuring nutrient concentrations by measuring whether the nutrient is functionally adequately. Abnormal concentrations of organic acids in the urine can provide a functional marker for metabolic effects of nutrient deficiences, genetic polymorphisms, impaired enzyme function, toxic exposure, neuroendocrine activity, and intestinal bacterial overgrowth. Organic acid testing can indicate the functional need for specific nutrients, diet modification, antioxidant protection, detoxification, and other therapies.

There is also some evidence that indicates low iron levels in the brain being associated with RLS. A CBC w/diff and an Iron Panel (Serum Iron, Ferritin, % Saturation, TIBC, UIBC) can identify an iron deficiency.

Restless leg syndrome may only be just a small part of the picture. It may be a simple nutrient deficiency in many cases, however, it is important to look deeper into the patient’s health. This includes thoroughly reviewing the patient’s history looking deeper into the cardiovascular system and other inflammatory markers. Looking deeper into the above factors can provide an effective treatment plan for patients with restless leg syndrome.

Dr. Michael Jurgelewicz, DC, DACBN, DCBCN, has been studying wellness for the past 10 years. He has a B.S. degree in Health & Wellness, a B.S. degree in Anatomy, and is a Doctor of Chiropractic. He is Board Certified in Nutrition by the American Clinical Board of Nutrition, a Diplomate of the Chiropractic Board of Clinical Nutrition, has completed Functional Medicine University with a Certificate in Functional Medicine and has studied under both world renowned thyroid expert, Dr. Datis Kharrazian and Chiropractic Neurologist, Dr. Frederick Carrick. He is also active in continuing education through the Clinical Nutrition Certification Board.


S. Auerbach, A. S. Walters. Restless legs syndrome: A predictor of lower physical function. Neurology, 2014; DOI: 10.1212/WNL.0000000000000298

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“HOW TO RELIEVE RESTLESS LEGS WITH NUTRITION” by Cynthia Crozier, The Spencer Institute

relieve-restless-legsWHAT IS RESTLESS LEGS?

Restless Legs is best described as an uncontrollable, strong urge to move your legs. You feel the need to move your legs, mostly when you are trying to relax, causing difficulties in sleep. Restless Legs, also known as Restless Legs Syndrome, or RLS, could give you unpleasant sensations in your legs, that occur mostly at bedtime. These sensations usually only feel better when you move your legs. You feel very uncomfortable and feel worse unless you move your legs. When the disorder is severe, you also may have the urge to move your arms, but that only happens in rare cases.

Many different symptoms have been described by people suffering from RLS, such as:

leg pain

These symptoms will start or get worse when you’re inactive, or in the evening. The urge to move increases when you’re sitting still or lying down and resting. Restless leg syndrome usually begins slowly. Over time, the legs become more affected.


We know that RLS has a lot to do with Inflammation. When you have less inflammation, you have less restless legs. The process to remove what is causing your inflammation is a job. And a big one at that.

Because this means that you will have to change your eating habits. Changing your eating habits by avoiding foods that cause the inflammation will set you on the right path of relief from RLS.

And adding more anti-inflammatory foods to your diet will set you on the road to recovery. Moving in this healthy direction will have more benefits for you than just relief from RLS.

As you begin removing the bad foods that are causing inflammation and adding in the good foods that will fight inflammation, you will be gaining relief from other things that may be weighing heavy on your mind. Weight, for one thing, is something that can be reduced as well when you begin to implement these changes to your diet. Some of the same healthy foods that will help with your RLS symptoms will also assist in getting you and keeping you at your goal weight.

The foods that are causing inflammation in your body are high in sugar and saturated fat.

You can figure these out on your own by looking at nutrition labels and by also using common sense. But here are the worst culprits that do the most damage:

Corn is at the top of the ‘bad’ list. Corn is in everything, and is causing lots of problems in our systems. GMO corn, is linked with inflammation in the stomach. You should read the nutrition labels and try to avoid foods with high fructose corn syrup or corn oil.

Gluten is another one on the ‘bad’ list. Gluten is found in most grains and is highly inflammatory. Bagels and other starches 1940s-gluten-image1contain gluten and are famous for triggering inflammation in the body. If you try to avoid foods that contain gluten and choose healthy grains or seeds like buckwheat, quinoa or millet instead, you will feel much better.

Trans fats and hydrogenated oils found in margarine, shortening and baked products that contain these fats like cookies, pies, buns, etc. are huge culprits of causing high inflammation in your body.

Look for the healthy alternatives because even small amounts of trans fats are dangerous and should be avoided.

Sugary foods are bad news for inflammation as well. Consuming foods like candy, or drinking soft drinks and even sweetened yogurt will elevate your blood glucose levels. When this happens, it activates the body’s response to cause inflammation. If you eat sugary foods, stick to 13 grams or less per serving.

Deep Fried foods like french fries, onion rings, chips, hamburgers, etc. are harder to digest than baked or even pan-fried foods. Consumption not only causes inflammation but also dramatically increases exposure to free radicals, which damage our body sort of like rust damages a car.

Iodized salt or any sodium is important to our body’s function, but too much can be harmful. It has been known to trigger high blood pressure, liver, kidney and heart disease. Especially in people who are overweight.

Deli meat is on the ‘bad’ food list for causing inflammation. Any meat that contains preservatives, that have been found to cause cancer are very bad for you. Bacon and sausage are the biggest culprits.

Omega 6 fatty acids that are found in cooking oils like canola, corn and soybean oil is something you should never have in your kitchen. Also, these oils are extremely fragile, that if exposed to heat, air or light they go rancid. Almost all store-bought corn, canola and soybean oil that have been sitting on the shelf for a long period of time has gone rancid. Rancid oils in the body causes free radicals which cause inflammation and could cause cancer. Replace these oils with the healthier alternatives like olive oil or coconut oil.

aspartime1Un-natural sweeteners like nutrasweet, splenda, saccharin, aspartame, aminosweet, etc. have been linked to many serious health conditions and should be avoided all the time.

Dairy products like yogurt, ice cream, cottage cheese, butter, cheese, etc. are very inflammatory foods because they contain lots of hormones, antibiotics, and other harmful ingredients.

Wheat products are a highly acid-forming and inflammatory item for the body. Also, most wheat now available is genetically-modified (GM). Many serious health concerns are starting to be linked to the consumption of GM wheat.

Alcohol is high in sugar and a burden on the liver. Alcohol is another inflammatory food item that should be used in moderation or avoided altogether.

Now that you know what to avoid that will cause inflammation in your body, here is the list of foods that fight inflammation in the body.

Fatty fish. Oily fish, like salmon, mackerel, tuna and sardines are high in omega 3 fatty acids, which have been shown to help reduce inflammation in the body. To get the most benefits, you will need to eat fish several times a week and it should be cooked in healthy ways, by avoiding fried, dried or salted. Fish oil supplements are a healthy alternative if you don’t enjoy eating fish.

Whole grains as opposed to white bread, cereal, rice and pasta, can help keep harmful inflammation away. Whole grains have more fiber, which has been shown to reduce levels of C-reactive protein, a marker of inflammation in the blood, and they usually have less added sugar.

Dark leafy green veggies contain one of the best sources of vitamin E, which has been known to play a key role in protecting the body from inflammation. The veggies that contain the higher concentrations of vitamins and minerals are spinach, kale, broccoli and collard greens.


Nuts are another source of inflammation-fighting healthy fats. Almonds, which are also rich in fiber, calcium and vitamin E are at the top of the list. Then comes walnuts, which contain high amounts of alpha-linolenic acid, a type of omega-3 fat. All nuts are packed with antioxidants, which can help our bodies fight off and repair the damage caused by inflammation.

Soy contains isoflavones, estrogen-like compounds, that may help lower CRP and inflammation levels in women. Avoid heaviliy-processed soy and instead go with more soy milk, tofu, and edamame (boiled soybeans) for your diet.

Low-fat dairy milk products as well as yogurt, which can also contain pro-biotics, have been known to reduce inflammation in the stomach. Foods with vitamin D and calcium, like skim milk and yogurt are good for all with their anti-inflammatory properties.

They are also important to keep up bone strength and possibly reduce cancer and other risks.

Peppers contain high quantities of antioxidant vitamins and lower levels of starch.

Hot peppers like chili and cayenne are rich in capsaicin, a chemical that is used in topical creams that reduce pain and inflammation. This may not be true for people suffering from rheumatoid arthritis, though. You should stick with what works for you.

Tomatoes may also help reduce inflammation in some people. Juicy red tomatoes, specifically, are rich in lycopene, which has been shown to reduce inflammation in the lungs and throughout the body. Cooked tomatoes contain even more lycopene than raw ones, so tomato sauce works too.

Beets have a brilliant red color which has been shown to reduce inflammation, as well as protect against cancer and heart disease, thanks to their fiber, vitamin C and plant pigments called betalains.

1243286.largeGinger and turmeric spices, common in Asian and Indian cooking, have been shown in various studies to have anti-inflammatory properties.

Turmeric, the ingredient that gives curry its yellow color, works in the body by helping to turn off the trigger that processes inflammation. Ginger has been shown to reduce inflammation in the intestines when taken in supplement form. Garlic and onions both contain anti-inflammatory chemicals.

Olive oil, along with anything fitting into a heart-healthy diet is good for inflammation. The compound oleocanthal, which gives olive oil its taste, has been shown to have a similar effect as NSAID painkillers in the body.

Berries are low in fat and calories and high in antioxidants. Berries have been shown to have anti-inflammatory properties, possibly due to their anthocyanins, which gives them their rich color.

Tart cherries have the highest anti-inflammatory content of any food. Experts recommend eating 1.5 cups of tart cherries, or drinking 1 cup of tart cherry juice a day to see similar benefit, they have to be tart.

Drinking plenty of water is one of the most effective natural remedies for inflammation. Water reduces inflammation and promotes cartilage health. To reduce internal inflammation, drink water to carry away waste products. Your body releases histamine in order to stop water loss. If you give your body adequate amounts of water, less histamine will be released. Avoid caffeinated drinks as much as possible, day or night.

Considering dietary supplements? You should first check with a doctor or nutritionist to find out if you are low on iron, vitamin B, folic acid, or magnesium first because deficiencies can bring on RLS symptoms. There are many supplements, vitamins & minerals and herbs to you to help fight inflammation.

Calcium + Magnesium (CalMag), Carrot Juice, Curcumin, Grape seed extract, iron, L-Theanine, Omega 3, Valerian Tea, Vitamin C. All of the above listed have anti-inflammatory properties. Some even also act as a natural antihistamine, or lowers glutamate levels.

While limiting or eliminating some foods and adding others, may just do the trick to stop RLS, there are a few other lifestyle changes that may contribute to the quickness of your relief from RLS.

You should also try to get to bed at the same time every night, while allowing plenty of time to wind down first, no eating 2 hours before bed, and take a really warm shower or bath to relax about an hour before sleep. As a bedtime routine, try relaxation and stretching techniques as well.
I hope this information is helpful to you.

Cynthia Crozier is a graduate of the Spencer Institute with a Certification as a Wellness Coach. She provides people with the assistance, motivation, guidance, inspiration & knowledge they need to gain proficiency in making healthy lifestyle changes, and to achieve the ability to create new wholesome habits on your own to live a happier, healthier more fulfilling life.

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Quote from Dr. Jonathan V. Wright, MD, Medical Director of the Tahoma Clinic, Tukwila, WA

drwright-e1284061802183“Drug therapy focuses on alleviating the nervous system imbalance to calm restless legs. However, taking these drugs is like using a SLEDGEHAMMER to crack a nut. They are quite powerful and dangerous and should be reserved for only the most severe cases.

Natural medicines and therapies, on the other hand, can be very effective, safe and without side effects.  

Many of my patients have proven that certain herbs provide AMAZING treatment for RLS. You don’t need to wait another day to start getting fast and permanent relief from RLS misery.”

– Dr. Jonathan V. Wright, MD, Medical Director of the Tahoma Clinic, Tukwila, WA

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“Sleep Disruptions Can Be Caused by Stress and Adrenal Function” by Dr. James L. Wilson

adrenal-fatigue-225x300Stress and adrenal function affect sleep, particularly the circadian pattern of cortisol secretion by the adrenal glands. Circulating cortisol normally rises and falls throughout the 24 hour daily cycle, and is typically highest at around 8 AM and lowest between midnight and 4 AM. Both high and low nighttime cortisol levels can interrupt sound sleep. Stress normally causes a surge in adrenal hormones like adrenaline and cortisol that increase alertness, making it more difficult to relax into sound sleep–especially when they remain high or rise and fall irregularly through the night. Frequent or constant stress can chronically elevate these hormone levels, resulting in a hyper-vigilant state incompatible with restful sleep.

If this is the reason for poor sleep, anything that reduces stress and enhances the ability to handle stress may improve sleep. This can include relaxation, breathing and/or meditation techniques, certain yoga postures, healthy lifestyle changes, and stress-relieving life alterations. Refraining from vigorous exercise in the evening and taking time to consciously relax before going to bed may calm the adrenals and help lower cortisol and adrenaline levels.

When the adrenals fatigue, adrenal hormone levels may become low, leading to another possible source of nighttime sleep disruption–low blood sugar. Cortisol plays an important role in maintaining blood sugar (glucose) levels around the clock. Although blood glucose is normally low by the early morning hours, during adrenal fatigue cortisol levels may not stay sufficient to adequately sustain blood glucose. Low glucose signals an internal alarm (glucose is the main fuel for all cells, including brain cells) that disrupts sleep so the person can wake up and refuel.

Low nighttime blood glucose can also result from inadequate glycogen reserves in the liver. Cortisol causes these reserves to be broken down into glucose that is then available to the cells. When low cortisol and low glycogen reserves coincide, blood glucose will most likely drop, disrupting sleep. Waking between 1 AM and 3 AM may indicate low blood sugar resulting from inadequate glycogen reserves in the liver, low adrenal function and cortisol, or both. This is often the culprit when panic or anxiety attacks, nightmares, or fitful, restless sleep occur between 1 and 4 AM.

If low blood sugar is disrupting sound sleep, supporting healthy adrenal function and dealing with the adrenal fatigue may adrenal-fruit1contribute long term to sound sleep. Also having a healthy snack before bed can help fortify the body’s nighttime energy reserves. The snack should be one or two bites of food that contains protein, unrefined carbohydrate, and high quality fat, such as half a slice of whole grain toast with peanut butter or a slice of cheese on a whole grain cracker. Eating or drinking sugary, refined foods will only aggravate the problem. Sometimes exercising before bed can help, since exercise tends to raise cortisol levels. (more on blood sugar and adrenal function)

Lack of sleep can be a significant body burden that, in itself, can contribute to adrenal fatigue. Every time the wake/sleep cycle is altered, it takes several days to weeks for the body and cortisol levels to adjust. In fact, sleep ranks with diet and regular exercise as an essential component of a healthy life. People on alternating shifts with less than three weeks between shift changes are continually hammering their adrenal glands and may become very susceptible to adrenal fatigue.

Chronic lack of sleep is now regarded as a health hazard and has been associated with several possible health consequences. These include lowered immunity with increased susceptibility to infections, impaired glucose tolerance, low morning cortisol levels, and increased carbohydrate cravings. Lack of sleep can also elevate circulating estrogen levels, upset hormonal balance, and slow healing and prolong the recovery period. These are in addition to the decreased alertness and concentration that most people experience when missing an inordinate amount of sleep.

what-stresses-your-bodyThe consensus from research and clinical observation is that it is necessary to sleep an average of eight hours per day. Some people need even more in the beginning phases of recovery from adrenal fatigue. A saliva cortisol test done at night and compared with daytime levels and with the test standards for those times will help determine if either high or low cortisol may be interfering with sound sleep. If cortisol is a likely culprit, cortisol levels will be significantly higher or lower than normal for those times.

With a researcher’s grasp of science and a clinician’s understanding of its human impact, Dr. Wilson has helped many DrJamesLWilson_navy_web100physicians understand the physiology behind and treatment of various health conditions. He is acknowledged as an expert on alternative medicine, especially in the area of stress and adrenal function. Dr. Wilson is a respected and sought after lecturer and consultant in the medical and alternative healthcare communities in the United States and abroad. His popular book Adrenal Fatigue: The 21st Century Stress Syndrome has been received enthusiastically by physicians and the public alike, and has sold over 400,000 copies. Dr. Wilson resides in sunny Tucson, Arizona.

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“How Can I Calm Restless Legs?” by Lauren Piscopo, Natural Health Magazine

how-can-i-calm-my-restless-legsAn integrative physician says:

If you have an uncontrollable urge to move your legs or if your lower limbs feel itchy and twitchy while you’re sitting or resting, you could have the neurological condition restless legs syndrome (RLS). Deficiencies of dopamine, the brain chemical that controls movement, and iron are major triggers for RLS.

The treatment:

Iron is needed to produce dopamine, so take 25 to 29 milligrams at bedtime with 100 milligrams of vitamin C, which aids absorption, plus 400 IU of vitamin E to enhance dopamine levels. Increasing the production of the neurotransmitter GABA will also relax your legs, so try theanine (50 to 200 milligrams) and magnesium (200 to 400 milligrams) before bed. The anti-spasmodic herb wild lettuce helps as well. — Jacob Teitelbaum, M.D., of Kona, Hawaii, medical director of the Fibromyalgia and Fatigue Centers

A nutritionist says:

When your muscles aren’t getting enough vital nutrients, such as iron, folate, magnesium, zinc, tryptophan and vitamin E, they tend to spasm. Another culprit: acid-reflux meds such as Prilosec, Prevacid or Tums, which prevent absorption of those nutrients as well as enzymes and protein.

The treatment: fat01067500251605886_n

Eat foods rich in the nutrients needed to ease your RLS; these include kelp, pumpkin seeds, beet greens, avocado and turkey. Buy organic foods when possible, because they’re thought to be more nutrientdense than nonorganic foods. To improve the absorption of nutrients, try stirring a tablespoon of apple-cider vinegar into 4 ounces of water and sip it slowly throughout your biggest meal of the day. It’s also smart to avoid caffeine, alcohol and processed foods, which inhibit mineral absorption. — Victoria M. Wood, R.D., C.N.S., M.P.H., a nutritionist in Washington, D.C.

A naturopath says:

Homeopathic medicine can ease specific symptoms with diluted doses of plant- and mineral-based remedies.

The treatment:

11107183883Take Zincum metallicum first because it helps relieve RLS sufferers’ most common complaint—the inability to control their leg and, sometimes, arm movements. If your jerky limbs wake you up at night, try to tame them with Causticum. Use Arsenicum album to ease the creepy-crawly sensations, especially if you also feel restless or cold. But if you’re itchy and hot, try sulphur. Rhus toxicodendron and Kali carbonicum may help, too. With all remedies, start with a 6C potency and take three pellets before bed. You can also buy combination formulas that will treat numerous symptoms. — Jamie Oskin, N.D., a naturopathic physician specializing in homeopathy at the Arizona Natural Health Center located in Tempe –

This article was originally published on the Natural Health Magazine website

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Success Story About Jules Taylor, an Infant Born With Restless Legs Syndrome

jules-taylor-infant-suffering-from-restless-legs-syndrome-wordpressOut of all of the people suffering from RLS that I’ve had the great privilege of talking to over the last few years, none have been as heart-wrenching as my talks with Darcy Taylor, whose daughter Jules was born with Restless Legs Syndrome.

Can you imagine the horror of being a newborn, having those twitchy sensations pulsating through your legs, torturing you endlessly, and not being able to communicate what’s happening?

Not to mention the severe mental and emotional toll it takes on the family, as you will learn from Darcy’s story.

I hope that Darcy and Jules’ story inspires those of you that are still suffering from RLS, and feel a deep sense of hopelessness.

What Jules’ story tells us is there is hope, no matter how dark things seem at the moment.

“My daughter Jules is currently 3 1/2 years old.

Jules had extreme sleep issues starting within the first week or two of life. There were a few nights when we slept a total of thirty minutes, and if we got a total of two hours of sleep, it was a good night.

We eventually did get a little more sleep than that, but still not much. By the time Jules was one year old, we were in a darcy-IMG_5654pattern of Jules not being able to fall asleep until 10 or 11 pm (no matter how many hours we bounced and paced or how tight we swaddled her…no ‘Happiest Baby on the Block’ in our house, sadly) and then waking up by about 1 am to then be unable to fall back asleep for 2-6 hrs. Also by one year old, Jules had her adenoids removed and was put on reflux meds, as her adenoids had enlarged and were “huge”, according to her ENT. The ENT felt that her adenoids had enlarged due to inflammation, and the assumption was that the source of inflammation must be a silent form of reflux, thus the reflux meds. Neither the surgery nor the reflux meds improved her ability to sleep, but she was once again able to breathe through her nose after surgery. (Due to later discoveries, I now wonder if it was actually dairy and gluten intolerance that were the underlying source of inflammation causing the enlargement of her adenoids.)

By the time Jules was 2, our lives had kind of been destroyed by Jules’ insomnia. I think people think I am joking or at least exaggerating when I talk about losing my mind during this time and my world falling apart, but I am not. There were some very, very dark times behind the closed doors of our home as we dealt with the serious repercussions of sleep deprivation. To this day my husband and I have still not recovered physically, and I feel emotionally scarred by an intense period of depression and anxiety and just ‘losing it’ at night when I couldn’t just go to sleep and abandon my baby to be awake alone. My son who is older than Jules showed significant signs of stress during this period as he lost his happy and healthy parents and instead had parents who could barely cope with life. We spent some time with a family therapist to help heal some of the anxiety and hurt on his end using play therapy (PCIT method), and this has helped. He is now a happy and well-adjusted kid.

So around the time Jules was turning 2, no amount of sleep training or discussions with other parents or our pediatrician had led to a solution. I was repeatedly told by well-intentioned people to let her “cry it out”. When we did try this, even committing to it for days on end, nothing changed. Instead of just hanging out with me for a few hours she would just scream for a few hours. It was cruel and nothing came of it. (I should note that we used sleep training and cry-it-out for my son and it worked miracles, so I was not a newbie to it). I had researched pediatric insomnia over and over online and had seen restless leg syndrome mentioned, but I just skimmed past it. I assumed that if Jules did suffer from restless leg syndrome, I would have noticed obvious kicking or her grabbing at her legs.

darcy_5669One night, I finally decided that I should investigate RLS as a possibility, because I had found a description of a typical sleep pattern for a child with restless leg syndrome that matched the pattern we were experiencing with Jules – basically, a child who cannot fall asleep unless crazy, crazy exhausted (so exhausted they can fall asleep before they start to feel the sensations in their legs, or at least before it becomes too strong)…. late bedtime, and unable to fall asleep for long periods if they wake up at night. I sat next to Jules after putting her in her bed and I laid my hand under her blanket next to her legs. I think my jaw must have dropped when I felt her legs twitching in a really subtle but unnatural way. I could not believe that I had finally found an answer. I was actually overjoyed to have finally found a reason for the suffering and insanity of our lives, something that I could actually now focus on finding a solution for.

I started rocking Jules to sleep every night so that I could feel the effects of restless leg syndrome and learn about it. The movements in her body caused by the RLS became so obvious, I cannot believe that I hadn’t noticed it before. She would both voluntarily move her legs in a bouncing fashion, and she would also have involuntary twitching. I realized that I actually had been aware of the bouncing, and in the past that had been a cue that she was not going to be able to fall asleep – I thought it meant that she did not feel tired and had excess energy. As I became very sensitive to what were natural ‘changing position’ movements and movements caused by the RLS, I discovered that the RLS affected not only her legs, but her arms and hands (perhaps more than her legs and feet) and sometimes her head and torso. She would rock her head a certain way, roll her pacifier incessantly between her fingers, contract her abdominal muscles, etc.

Our pediatrician had never heard of a child having RLS, but she was fantastic, because she was willing to trust my hours aasalus_ironand hours of research and my observations. She ordered the bloodwork that I wanted (ferritin, iron, etc) and referred us to a sleep specialist. Jules’ ferritin levels were at 28, which would not have been flagged as abnormal, but I knew from my research that anything below 35 is a definite issue for pediatric cases of RLS, and some kids might need their ferritin levels to get up to 80 before finding relief from symptoms. (Currently Jules is at about 50, this after over a year of daily Floradix liquid iron).

Our experience with the sleep specialist wasn’t what I had hoped for. Our sleep specialist had not personally worked with a child with RLS and he wasn’t knowledgeable about options other than some scary medications that even he was nervous about prescribing. We were desperate enough to be willing to pursue the medication route, however, even if just for a while to allow us to pull our lives back together. (An interesting side note is that one of our appointments with the sleep specialist involved me hauling Jules asleep all the way to the appointment and her laying on his exam table asleep through the entire appointment and then sleeping all the way back to our car, because she had hardly slept the night before. So glad those days are long gone.)

We did a sleep study to rule out sleep apnea, particularly because sleep apnea would have meant that we didn’t even have the option of trying some of the medications used to treat insomnia caused by RLS in pediatric patients – the meds combined with sleep apnea can apparently lead to a child not breathing at night. A sleep study is a scary thing for a two year old, but the study went reasonably well. Jules did not have sleep apnea and she did not have periodic limb movement disorder, but she did have a higher than normal amount of non-rhythmic leg movements – we were told there is no diagnosis name for a high amount of these kinds of non-rhythmic movements. We decided to try clonazepam, because we felt desperate to have a period of sleep until we could raise her ferritin levels and try diet changes.

Unfortunately (or fortunately, as I now perceive it), Jules had a paradoxical reaction to the clonazapam and became very hyper when she took it. We lasted two or three days trying it and then had to quit.

111Superior-Source-Melatonin-1-mg-100-MicroLingual-Instant-Dissolve-TabletsAt this point, I felt lost. The sleep specialist had no other treatment options for us, but he did suggest using melatonin to aid sleep onset and discussion with him relieved me of the fears I had about using melatonin. We began using a very small amount of melatonin thirty minutes before bedtime to aid sleep onset: 0.25 mg, or one quarter of a 1 mg dissolvable tablet that we cut with a pill cutter. The use of melatonin allowed us to shift Jules’ bedtime from 10-11 pm to 7-8 pm. My assumption of how this helps her is that it makes her drowsier than normal, and thus she requires less time sitting/laying still before her brain is ready to fall asleep. Less time sitting/laying still before sleep means less time for the sensations and movements of RLS to build. So by adding melatonin, we shifted her bedtime up by a few hours, which was amazing, but melatonin aids sleep onset, not sleep maintenance. So Jules would still wake up a few hours later and then be up for 2-6 hrs.

Just prior to the sleep study and our attempt at using clonazapam, we had discovered that Jules was gluten intolerant (in addition to being lactose intolerant, which we had discovered when she was about one year old). Removing gluten actually did seem decrease the RLS movements a bit (and improved her daytime behavior a lot!), but not enough to let her sleep any better. Studying this out online, I found David’s website and then was in contact with David discussing how to apply his advice to our situation with a toddler.

Once medication was definitely not an option, even for a short period, I began to focus solely on diet/supplement/lifestyle changes to help Jules. Because of Jules’ age, what I have been able to apply in our case has been a bit limited (for example, Jules won’t touch carrot juice and I was not successful hiding it in popsicles), but we have made AMAZING progress without any scary prescription medications.

At this point Jules is now 3 1/2 and sleeps pretty much through the night. Our norm is for her to wake up once each night, waking me to help her get back to sleep. When she does wake up, however, she can actually fall back asleep in a reasonable amount of time instead of being awake for hours.


IRON – Floradix liquid iron, daily on an empty stomach, first thing in the morning – Dr. Suresh Kotagal of the Mayo Clinic in Minnesota studies pediatric RLS and treats it with iron. Children with RLS have lower than normal body and brain stores of iron (ferritin), and lower than normal brain levels of dopamine (dopamine production requires adequate iron stores, so possibly a secondary issue). Ferritin levels lower than 35 have been found to be low enough to contribute to RLS, with some children needing ferritin levels of up to 80 to find relief. We give Jules Floradix using the mg/lb dosage suggested by her pediatrician, a dosage that would be given to a child considered anemic. After one year on Floradix, her ferritin levels increased from 28 to 50. We plan to continue at treatment level dosage for another year and then check her levels again. Warning: iron supplementation will cause stool to be black at times, but Floradix does not constipate like some forms of iron.

CALCIUM, MAGNESIUM, AND ACTIVATED FOLIC ACID – powder versions mixed into juice, daily with food – We worked with111bioceuticals-folinicacid-bfolinic120_524x690 a naturopath to choose the appropriate supplements and dosages. Calcium blocks iron absorption, so we never give her iron and these supplements at the same time of day. Sometimes she has runny bowel movements from the supplements, especially the magnesium. Some forms of magnesium are more gentle on the digestive system, thus using a naturopath to guide us in our selection. Even when only given tiny amounts of the gentle versions, however, Jules will sometimes have runny stool. Part of the issue may actually be the juice in conjunction with the supplements – maybe too acidic. As she gets older, we will be able to find a better balance with these things. Jules may be extra sensitive digestively. She does have dairy and gluten intolerance, so maybe she is just prone to these kinds of issues. In all honesty, this is the part of our routine that I sometimes skip for weeks at a time due to the digestive component. And the juice-addiction component that I find really grating to deal with as a result of the consistent use of juice as a supplement vehicle – frequent tantrums demanding juice make me grumpy J.

MELATONIN – 0.25 mg daily, 30 minutes before bed – We use a pill cutter to cut up 1 mg Source Naturals peppermint-flavored sublingual tablets made for adults. We cut the tablets into four to make 0.25 mg pieces.

ESSENTIAL OILS – I was a serious skeptic when a friend recommended that I consider implementing the use of essential oils to treat restless leg syndrome, but I did research it and found testimonies of people who suffer from seizures using Frankincense to reduce the number of seizures they have. Because the medication typically used to treat RLS is also used to treat conditions such as epilepsy, I decided to try it. We now rely on it. I have seen consistent results that when we use this (I will explain how in a bit), the twitching in Jules’ legs as she is trying to fall asleep is decreased.

When life happens and we fall out of the habit, the twitching slowly increases over time, and when we add it back into our routine, it slowly decreases again over a matter of days. Since

111frankincense._pure-frankincense-essential-oil-15ml-boswellia-carteriiJules is a young kid who doesn’t know why we even use this stuff on her, there is no chance of placebo effect. How we use it: before bed, and ideally after a warm bath which creates absorbent skin and dilated blood vessels, we massage unprocessed solid coconut oil along her spine (base of skull to tail-bone) and on her legs and feet (knee down). We then massage about two drops of pure frankincense essential oil along her spine and about two drops per leg/foot. The amount used may need to be higher for an adult. This stuff is expensive, costing us about $60 per small bottle, which lasts us about a month, but for Jules it really does work. I have purchased oil through both Doterra and Rocky Mountain Oils and both had the same effect, despite having different fragrance notes (depends on the location of growth, time of year harvested, specific species, etc).

When we do give Jules a bath before bed, we often add a few drops of lavender essential oil, which is relaxing not only because it has a nice smell (for those who like it), but because it truly does have a chemical compound that acts as a sedative.

If Jules wakes up at night and is having a difficult time falling back asleep due to her legs, we massage her legs with coconut oil and then massage in an essential oil blend by Doterra called Past Tense that comes in a little roller-vial meant to be used on the forehead for headaches. Past Tense has peppermint oil and other oils that result in an icy sensation wherever it touches your skin, and this seems to be a distracting sensation that can help ‘cover up’ the uncomfortable sensations caused by RLS.

We also have an essential oil diffuser in Jules’ room and have used various sleep-aid blends, with one in particular that we have relied on a lot being made up of this ratio: 10 drops roman chamomile, 7 drops palmarosa, and 5 drops mandarin.

DIET – Jules is already dairy and gluten free due to intolerance, so I have not toyed around with adding and subtracting these from her diet for experiment sake and cannot say how they play into RLS. There is a definite increase in issues with the RLS when she eats chocolate and sometimes if she has too much sugar. We have had some horrible nights that seem to have come directly because of chocolate.

ROCKING TO SLEEP – Even though Jules is 3 ½, we still rock her to sleep! (Though she is so tall now, we are trying to wean her of this). The rocking movement is a distraction from the RLS sensations. This was a requirement for sleep onset when we were just beginning this journey (as was the use of hot baths before bedtime, heat pads under her legs or arms, and constant squeezing/massage of her legs and arms), but I think that we could get away without it now, we just need to train her to fall asleep without it.

I should mention that when Jules gets sick with a cold, we have a much harder time with RLS. I think this is because of two things – the twitching may actually be worse when sick, maybe related to systemic inflammation due to the actual cold, and then she just naturally wakes up more at night when coughing or uncomfortable, so more opportunities to experience the RLS sensations.

As Jules gets older, I look forward to her becoming part of the process of figuring out what helps her by playing around more with diet and supplements, but that is so hard to do at her age.

If she worsens at some point in the future despite our current routine, I will of course become more strict with things like low sugar diet, nightly baths, etc.

We have yet to try things like earthing sheets (a recent discovery to help lessen inflammation) or consistent use of probiotics (methods to creating a healthy gut to cut down on the production of inflammation). We did test our house for mold spores and that does not seem to be an issue, but we could revisit that.

One option that I am very interested in, should we ever find ourselves desperate again, is an incredible cannabis oil (ultra-111cbd-oil-realm-of-caringpotent, non-psychogenic) being produced by a company in Colorado called Realm of Caring/Charlotte’s Web Hemp Products that is a miracle treatment for seizure sufferers. Once again, because the medications used for RLS are often the same as those used for epilepsy, I have a hunch that what works for seizures is likely to work for RLS. This might be an option for those who are desperate and nothing else is working for them, but is currently only available in Colorado, I believe, and not legal to ship. You Can Read How It Has Helped a 6 Year Old Girl Here. The video in this link is amazing and definitely worth watching!

So anyway, I have cannabis oil as a last resort idea and have even contacted the company to be informed when their product is available in Oregon.

I am so, so grateful for people who are putting their studies, observations and experiences online for others to discover in their desperation! I found David’s website at a time when the medical professionals of our area were telling me that they did not know what else to do for us.

Learning that diet and supplements really could be used to treat RLS gave me hope and confidence and we really did make progress and now have a pretty normal life. RLS is a handicap that still affects us daily, as we generally do not sleep through the night without waking up once with Jules, but we are at least living again instead of being in a downward spiral. I believe that as Jules gets older and can play a role in moving toward an anti-inflammatory diet and better supplementation, she really will be able to get it under better control.

I really hope this information can help someone else. I am so glad the insanity is over! “

– Darcy Taylor, Hillsboro, OR

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