Posts Tagged vitamin e

I’ve Been Banned from RLS.uk and RLS.org

ImageI created a link to my most recent post about RLS being a symptom (and not a disease) on the discussion boards at RLS.uk and RLS.org.

RLS.org deleted the posting. RLS.uk removed the posting and banned me from their community.

This brings up an issue I have with the admins of these discussion boards. They are always very pro-med and not open in the least to any sort of natural remedy.

A few years ago, the admin of the RLS.or.au community board actually said that “Sifrol was God’s gift to humankind”. The sad part is, she wasn’t kidding. She actually felt that she had found her Nirvanna.

The sad irony is that she prevented me from posting on their website because I was promoting the benefits of natural RLS remedies.

ImageJust so you know, here’s a list of possible side-effects of the wonder-drug Sifrol (Pramipexole hydrochloride).

from MyDr

feeling sick (nausea)
    vomiting
    constipation
    diarrhoea
    dry mouth
    drowsiness
    tiredness
    confusion or hallucinations (seeing, feeling or hearing things that are not there)
    restlessness
    dizziness
    headache
    light-headedness on standing up, especially when getting up from a sitting or lying position (hypotension)
    blurred vision
    swelling of hands, ankles or feet (peripheral oedema)
    uncontrollable twitching, jerking or writhing movements (dyskinesia)
    difficulty sleeping or unusual dreams
    weight gain or loss
    loss or gain of sexual drive

Some of these side effects are more common at the start of treatment and lessen or disappear with time. Tell your doctor immediately if you or your family notice any of the following side effects:

    loss of memory (amnesia)
    fainting
    signs of allergy such as rash or hives on the skin; swelling of the face, lips, tongue or   other parts of the body; wheezing or difficulty breathing
    excessive sleepiness or sudden onset of sleep during normal daily activities
    compulsive behaviour such as gambling, hypersexuality, shopping, eating, medication use and repetitive purposeless activities
    mental illness causing severe suspiciousness (paranoia)
    shortness of breath or tightness in the chest (dyspnoea)
    shortness of breath, swelling of the feet or legs due to fluid build-up (heart failure)

Tell your doctor if you notice anything else that is making you feel unwell. Other side effects not listed above may also occur in some people.”

ImageYIKES!

How did this person become the admin of a community that is trying to get well?

I don’t like the fact that she blocked my posts, but what bothers me even more is that she is promoting this horrendous drug to others as the best option available.

Another thing that irritates me about the overall “unwellness” of these online communities is that the admins are usually quick to say to anyone that finds some sort of relief “that’s great that you found a remedy … I hope that your success continues. Remember there are many paths and many solutions.”

ImageTRANSLATION: “Whatever you did won’t help me. There’s no sense in my even trying. My RLS is far worse than you could ever imagine. It’s a heavy cross I bear!”

What kind of support is this? It makes no sense?

This is especially true at RLS.org where they have a specific board for “Natural Remedies”, yet this board is monitored by pro-med administrators.

I contacted Georgianna Bell at RLS.org and to her credit, she got back to me right away. She said she would look into it.

I hope this issue is dealt with, but I’m not going to hold my breath.

This is a travesty for anyone looking for help.

Here’s my analogy to help put this craziness into perspective.

ImageLet’s say I’m a recovering alcoholic with several years of sobriety, now living a wonderful life.

I have my life together, I feel great, and I want to try and give back – to help others that are in a place that where I once was. A place that was dark, painful and without hope.

I visit an online community for alcoholics that are trying to stop drinking.

ImageIt turns out that most of the community is taking Antibuse (a supplement that makes you barf if you drink alcohol) as their way to stop their habitual drinking, including the moderator.

Antibuse doesn’t heal or change anything and doesn’t deal with the reason WHY you drink in the first place … all it does is make you sick when you try to drink. It’s really the definition of a “band-aid” cure.

Most of the talk on this community board is about the right amount of Antibuse to take.

So, I draw from my experience and post a comment of how going regularly to AA meetings has really helped me, as well as attending a treatment center, reading books on recovery, getting a sponsor, meditating, praying, following a proper diet etc.

The pro Antibuse moderator then either:
a) belittles my methods, and makes it clear that if this hokum worked, then I wasn’t a real alcoholic.
b) deletes the post before anyone sees it because it might corrupt their minds.

I’m sure many of you are as frustrated as I am.

Hopefully, someday, someone creates an RLS support community that allows ALL points of view, without censorship.

ADDED NOTE (Aug 15, 2013)

I’ve been allowed back onto the RLS UK discussion board (thanks to a lot of support from some of their members who protested the ban). To say I’m on thin ice there is an understatement.

Also, my post about RLS being a symptom has been put back up at RLS.org. They said that it was originally deleted by mistake. I’m also wearing out my welcome there.

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Your Restless Legs Syndrome is Not a Disease. It’s a Blessing in Disguise (PART TWO)

ImageTHE EPIDEMIC OF CHRONIC (SILENT) INFLAMMATION

Do you really in your heart of hearts think that the 40% higher than normal mortality rate of the RLS subjects in the Harvard study, is due to a low iron count? Or because they didn’t take enough potassium? Or they didn’t wear stretchy socks at night? Or didn’t fork out the dough for a magnetic belt?

No, obviously not. The deaths have NOTHING to do with twitchy legs. The deaths have EVERYTHING to do with the CHRONIC inflammation that resided within these people.

Chronic inflammation has reached EPIDEMIC proportions!

Again, I’m only going to list a few excerpts to support this. THe full article can be found at: http://www.rlcure.com/blessing.html

from “Silent Inflammation” by Dr. Barry Sears
“We often make medicine more complex than it really is. That’s because the underlying cause of chronic disease is increased inflammation. What we see as heart disease, cancer and Alzheimer’s are not different diseases, but simply different manifestations of long-term damage caused by a continued inflammatory attack on your organs.”

from “Chronic Inflammation – The Health Epidemic You Don’t Know About” by Steve Wallach
“Chronic inflammation is often referred to as “the silent killer” because most people aren’t aware they’re inflamed until it’s too late (i.e., they suffer a heart attack or are diagnosed with disease).”

from “12 Tips for Extinguishing Disease-Causing Inflammation” by Paul Fassa
“Chronic Inflammation is a silent epidemic; a plague afflicting millions of unsuspecting Americans. It is the mother of most major chronic diseases including heart disease, cancer, obesity, Alzheimer’s and many others.

Chronic inflammation is typically a silent, under the radar, asymptomatic disease – until actual tissue damage and loss of function occurs. There is no single direct test for inflammation. Instead, doctors use indirect methods by measuring blood levels of C-reactive protein, a pro-inflammatory marker and homocysteine levels.

Managing inflammation before it manifests into a recognizable disease is an important key to maintaining one’s health. Diet accounts for the majority of the benefits you reap from a healthy lifestyle, and keeping inflammation in check is a major part of these benefits.”

from Natural Grocers “Inflammation: The Newest Epidemic?”
“What do heart disease, cancer, obesity, diabetes and arthritis all have in common? They all stem from chronic inflammation – the culprit behind almost every modern disease. Understanding the biochemical reactions behind acute versus chronic inflammation can reduce your disease risk and help you lead a more productive, fulfilled life.”

from “The New “Plague” Of Our Times: America’s Inflammation Epidemic” by James South, M.A.
“Throughout most of human history, the main threats to human life and health have been the germ diseases: smallpox, bubonic plague, tuberculosis, dysentery, influenza, typhoid fever, etc. In the developed world these diseases have been mostly eradicated over the past century, and a new set of diseases has become the main cause of debility, illness and death.

The illnesses/conditions that plague the industrialized nations include allergies, asthma, age-related frailty, Alzheimer’s disease and other dementias, arthritis, atherosclerosis, cancer, congestive heart failure, chronic fatigue/fibromyalgia, depression, diabetes, heart attack, inflammatory bowel disease, kidney disease, lupus, macular degeneration, osteoporosis, periodontal disease, overweight/obesity, skin disorders, stroke and surgical complications.

Surprisingly, modern science has discovered a common denominator to all these conditions, and it isn’t germs. It is inflammation. And while germs may be considered enemy aliens who invade our bodies, inflammatory conditions are created by our own physiologic reactions. As Pogo wisely stated, ‘We have met the enemy-and it is us.'”

from Time Magazine “Health: The Fires Within” by Christine Gorman, Alice Park and Kristina Dell
“Suddenly, inflammation has become one of the hottest areas of medical research. Hardly a week goes by without the publication of yet another study uncovering a new way that chronic inflammation does harm to the body.

ImageA SHORT LIST OF INFLAMMATORY DISEASES AND CONDITIONS

Just to drive the point home, below you’ll find a list of diseases and conditions that prolonged or “chronic” inflammation can eventually manifest as. More information of each of the diseases and their relationship with inflammtion can be found here www.rlcure.com/othercond.html

Parkinson’s, Acne, Acromegaly, Aging, Alzheimer’s, Amyloidosis, Amyotrophic Lateral Sclerosis (ALS), Anemia, Aortic Valve Stenosis, Arthritis, Asthma, Ataxia, Attention Deficit Hyperactivity Disorder (ADHD), Cancer, Celiac Disease, Chronic Fatigue Syndrome, Chronic Obstructive Pulmonary Disease, Chronic Sarcoidosis, Chronic Venous Disorder, Colitis, Crohn’s Disease, Cryoglobulinemia, Cystic Fibrosis, Depression, Diabetes, Erectile Dysfunction (ED), Fibromyalgia, Heart Disease, Hodgkin Disease, Human Immunodeficiency Virus (HIV), Huntington’s Disease, Irritable Bowel Syndrome, Kidney Disease / Renal Failure, Liver Disease, Lupus, Lyme Disease, Migraines, Multiple Sclerosis, Myelitis, Narcolepsy, Neuropathy, Obesity, Pancreatitis, Parkinson’s, Poliomyelitis (Polio), Pregnancy Psoriasis, Pulmonary Hypertension, Scleroderma, Sjogren’s Syndrome, Sleep Apnea, Small Intestinal Bacterial Overgrowth (SIBO), Spinal Cord Conditions, Stroke, Tourette’s Syndrome and Tuberculosis.

ImageHaving read the above excerpts about the epidemic of chronic inflammation at the top of this page, and having looked over the diseases listed above – the most widespread diseases and conditions that exist in the world today … how could anyone POSSIBLY state, without a doubt, that Willis-Ekbom Disease/Restless Legs Syndrome DOESN’T belong on that list?

That’s it’s an exception?

That’s not being insightful. That’s just being stubborn.

And it could cost you your life.

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I Heard Back From EasyHealthOptions.com and Got My Link and Credit!

ImageI sent an e-mail to Dr. Cutler about the article he wrote on the website EasyHealthOptions.com that included a lot of information taken from my Restless Legs website www.rlcure.com

Dr. Cutler didn’t return my e-mail, but the owner of the website, Carl Lowe, got back to me right away and apologized for the oversight.

He is going to put up a link and also asked me to submit an article.

“Good afternoon Mr. Wimble,

I am the editor of easyhealthoptions.com. As you suggested, we will put a link to your website in our story about restless leg syndrome.

If you would you like to write a short item for easyhealthoptions.com, I could run it in the near future and include another link to your site in that article, too.

Yours,

Carl Lowe”

I appreciate the fact that he even got back to me. The link and article are a bonus.

I know, a single link or article doesn’t seem like much to anyone. But having been constantly under attack for over 4 years now, with no help in sight, for me, this is a major victory.

ImageThis is the first professional support that I have received since my ongoing discussions several years ago with Dr. Leonard Weinstock. He and his team published a study showing that there is likely a strong connection between inflammation and RLS.

Dr. Weinstock was kind enough to talk to me at the time about his upcoming paper, and we actually learned quite a bit from each other. Unfortunately some RLS zealots (some real kooks) forced him (through legal action) to break all ties with me.

Still, his study speaks for itself. There is no denying the facts that it presents.

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Dr. Michael Cutler Endorses my RLS Website …. kind of.

plagerismgy_324I was searching online and ran across an article (below) by Dr. Michael Cutler. I almost jumped out of my chair with excitement when I saw that he stated that inflammation was the cause of RLS!

Then I noticed that 70% of his information was taken from my website. There’s no credit or citation. He refers to me as a “blogger.”

I know where I stand in the medical universe. I’m smaller than an amoebae. You can’t even see me under the corporate microscope I’m so puny.

And I know someday I’ll be crushed into total oblivion when someone with some weight behind them tells the world that they’ve discovered that inflammation is the cause of RLS!

But come on … give a brother a break. At least throw me a bone and say my name!

Anyway, even though I question this doctor’s ethics, I will take this article as a compliment  and will consider this to be a small victory.

ImageExamining Restless Leg Syndrome by Dr. Michael Cutler  

Restless leg syndrome (RLS) is an inflammatory condition with similarities to other autoimmune diseases and chronic illnesses. As such, conventional doctors do not know the cause of RLS. However, they agree that something triggers inflammation that affects the nerve pathways involved. Let’s take a closer look at what RLS is and what causes it. I’ll also discuss some important ways to reverse it without taking prescription medications.

Defining RLS

RLS, a predominately nighttime neurological disorder, afflicts as many as 12 million Americans. It is characterized by an uncontrollable urge to move the legs or even involuntary leg twitching while at rest. It usually takes place at night, but it can also be a daytime phenomenon during prolonged periods of sitting. Sufferers often report a feeling of tingling, aching, itching or slight burning deep in their lower legs. Moving the legs seems to make them feel better. Sometimes, the sensations are in the thighs, feet, hands or arms.

Conventional Medicines For RLS

The prescription drugs that doctors typically prescribe for RLS include:

Quinine sulfate (still relatively safe and effective, despite new Food and Drug Administration controls).
Dopamine (brain neurotransmitter) stimulators: Mirapex, Neupro, Requip and levodopa. Sinemet quickly causes augmentation and rebound. (That is, it soon stops being effective.)
Benzodiazepines for sedation: Valium, Ativan, Xanax, Klonopin, etc.
Anti-seizure medications: Tegretol, Lyrica, Neurontin, etc. (These are addictive.)

What Worsens RLS?

We know that there are certain chronic health conditions associated with RLS. That’s because when there is inflammation in one organ system, it’s also likely to be in others.

More importantly, we should be asking: “What things worsen the underlying inflammation of RLS?” Some food constituents that worsen RLS as reported by bloggers can include: aspartame (the artificial sweetener NutraSweet), caffeine (in coffee, tea and certain cola drinks), gluten (proteins found in wheat, barley and rye), monosodium glutamate (MSG), alcohol, tobacco (nicotine), and refined sugar (when you consume too much for too long).

We also know that certain prescription medications seem to make the condition worse. Medications reported to exacerbate RLS include some antinausea drugs, antipsychotic drugs, antidepressants and cold/allergy medications. Sleep deprivation seems to make it worse for many RLS sufferers.

Contributing Causes For RLS

Can RLS be caused by nutritional deficiencies? We know that the minerals magnesium and calcium relax muscles. And classic symptoms of low magnesium include tremor, muscle fasciculation, twitches, involuntary jerks and even tetanic cramps (the familiar “charley horse”). Those symptoms have similarities to RLS.

Previously, I have wondered how a healthy person could become magnesium-deficient if each of us has a built-in homeostasis mechanism to keep magnesium in proper balance (intestinal absorption, kidney excretion and bone deposition/exchange).

Yet I’ve since learned that it is easy to become low in magnesium and that magnesium deficiency is not being reported. Medical doctors routinely check for magnesium in the serum of “healthy” patients, yet this is a poor nutritional evaluation because only 0.3 percent of total body magnesium and less than 1 percent of total body calcium are measurable in the blood. Moreover, the peer-reviewed science tells us that the diagnosis of low magnesium or low calcium is vastly underestimated.

The RDI (recommended daily intake) of magnesium is the minimum daily intake established by the government, yet this level even appears to be too low for great health. [2] A government study shows that 68 percent of Americans do not  consume even the recommended daily intake of magnesium (420 mg a day for adult males) and that 19 percent of Americans do not  consume even half of the RDI of magnesium.

Magnesium is reportedly becoming depleted in our soil and is also becoming less absorbable. Worse, many common prescription medications and hormone imbalances also lower our magnesium. [4] For more comprehensive information (it’s interesting reading) about the real problem of magnesium deficiency in the United States, go here, here and here.

Deficiency Situation

Deficiencies of folate (a B vitamin) and iron have also been shown to be associated with RLS. That’s probably why they are used therapeutically by RLS sufferers.

Furthermore, nutrient deficiencies can contribute more readily than we have been led to suspect.

There is a relationship between gut health and brain function/psychology. It has been described by a neurologist/neurosurgeon with postgraduate degrees in human nutrition, Natasha Campbell-McBride, M.D. I believe there is a similar relationship to other chronic nerve-related diseases, including RLS.

Campbell-McBride records the nutrient deficiencies commonly found in patients with neurological disorders such as autism, ADHD and dyspraxia to be most commonly: “magnesium, zinc, selenium, copper, calcium, manganese, sulphur, phosphorus, iron, potassium, vanadium, boron, vitamins B1, B2, B3, B5, B6, B12, C, A, D, folic acid, omega-3, 6, 9 fatty acids, taurine, alpha-ketoglutaric acid, glutathione and many other amino-acids”

The Nutritional Difference

Since chronic inflammation usually begins in the gut, take a look at what foods you eat that could be contributing to an unhealthy gut flora and an unhealthy digestive lining. Refined sugar, bread and other processed foods all must be replaced by whole foods. I recommend that half the foods you eat be raw foods.

Fruits, vegetables and other whole foods contain the minerals, vitamins, antioxidants, fiber, healthy oils and phytochemicals that quiet down inflammation in your body, including problems in your nerve tissues.

Nutrient Supplements

Once digestive health and a clean diet are established, I’d then look to nutrients to help lower RLS symptoms. Here’s my list of supplements that work for many RLS sufferers:

Probiotics: necessary to establish a healthy flora and tissue lining.
Calcium, magnesium and zinc: minerals required for normal nerve function.
B vitamins: build healthy nerve tissue.
CoEnzymeQ10: an antioxidant and ATP-generator.
Fish oil or krill oil: (6 grams daily) fights inflammation and heals nerve tissue.
Sphingomyelin, phosphatidylcholine or phosphatidylserine: known to be healing specifically for nerve tissue disorders.
Ginkgo biloba extract: 40-80 mg twice daily helps improve nerve cell function and acts as an antioxidant.
Butcher’s broom: A study [8] reported: “Symptoms such as heaviness in the legs, tingling, and a sensation of tension all improved in the people taking butcher’s broom, whereas no improvement in any of these symptoms occurred in the placebo group.”
Valerian root: for symptom relief via sedation at night.

What Else You Can Do For RLS

Some additional simple ways to help relieve RLS include leg massages, hot baths/heating pads or even cool packs before bedtime applied to the legs. Acupuncture, exercise and yoga have also been used with success.

To feeling good,

Michael Cutler, M.D
Easy Health Options
http://easyhealthoptions.com

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Testimonial from Marty Krais, Brooklyn, NY

Image“Dave, I just had to let you know that you’ve changed my life. My words can’t express how I feel. I can’t thank you enough!

It’s only been about 3 weeks and my legs are in amazing shape. I stopped taking Requip after about 8 days. I’m telling everyone I know about it.

My wife has fibromyalgia and she’s going to try out your remedy as well. The drugs she’s using now are so powerful she can only go on them for a short while.

I’ll keep you posted!

Thanks again!”  

– Marty

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The “Remedies Page” for Restless Legs Syndrome Has Been Updated

ImageI’ve been working all week updating the “REMEDIES” page of my website.

http://www.rlcure.com/daily.html

There are a couple of reasons for this.

1. The most common issue people have had with the remedy is the high cost of the supplements. Some of them can be very expensive.  To put a couple hundred dollars a month towards supplements is just not realistic for most people.

With that in mind I have created a “BASIC GROUP” of supplements that should be affordable for almost everyone.

After the BASIC GROUP, you’ll see a list called the “ADDITIONAL SUPPORT GROUP.” These are supplements, vitamins, minerals and herbs that I highly recommend you include … only if you can afford them.

2. The second reason for the update was to include supplements that will help lessen the glutamate and histamine levels that, during various studies, have found to be higher in Restless Legs subjects.

ImageI have also updated the PRETEST page. The PRETEST supplements are a very small group of vitamins, herbs and minerals that I suggest people try out if their skepticism won’t allow them to dive right in.

http://www.rlcure.com/pretest.html

The PRETEST includes supplements that will not only provide anti-inflammatory support, but will address the high levels of histamine and glutamate, as well as. It will hopefully bring a better sleep to your recovery, sooner.

 

In case you’re reading this and thinking that I’m trying to sell you these supplements, that’s not the case. You have to purchase them on your own at your local Health Food Store.

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Testimonial from Clive Mainwaring, Lot et Garonne, France

Image“David, originally you promised it would take two weeks to see a marked improvement, or in my case, (worse scenario) three weeks.

I must tell you the difference is truly amazing! Starting this coming Monday will be my fifth week and I have to report that last Thursday was in my opinion the beginning of the end of RLS for me – the end of over 30 years of suffering!

After weeks of torment and little or no sleep, I slept like a log for nine hours and this past Wednesday, Thursday night, and last night I slept equally for 7 and 8 hours respectively. Boy, oh boy oh boy, so a huge thank you David for that!

For three days now I have been free of all pain and the joy of climbing into bed, knowing that moments later I would be asleep is not describable to those outside our suffering.

Life has some meaning again. Sleep is my warm friend and thank you again for your emails and concerns.”  – Clive 

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